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Press release

Dame Fiona Caldicott to lead review into confidentiality and the sharing of health and social care information

Dame Fiona Caldicott to lead a review of the balance between protecting patient information and its sharing, to improve patient care

In January, the Government accepted the Future Forum’s recommendation for a review of the balance between protecting patient information and its sharing, to improve patient care. Dame Fiona Caldicott has agreed to lead this review.

Dame Fiona is known across the NHS as the originator of ‘Caldicott Guardians’, the individuals responsible in every NHS and local authority organisation for making decisions about sharing identifiable information.  This requires balancing the public interest of protecting confidential information with the public interest for sharing the information.  She will be calling on an expert panel made up of clinical, social care, research and other professionals, as well as patients and service users. The panel will determine the detailed scope and priorities for the review.

The review will be independent of Government and will report to the Secretary of State. The Department of Health expects to respond to the panel’s recommendations when the review publishes during 2012.

Dame Fiona Caldicott said:

“It is timely to reconsider the principles of information protection and sharing.  Since the original working group’s report on the security of patients’ information in 1997, it has become clear that there is sometimes a lack of understanding about the rules and this can act as a barrier to exchanging information that would benefit the patient.  On other occasions, this has resulted in too much information being disclosed.  These are issues of importance to everyone who uses health or social care services and our review will look across both sectors.  We need to examine when and how to seek and record consent, to support the flow of information to enhance patient and citizen care.”

Andrew Lansley, Secretary of State, said:

“Ensuring that information is shared for best care and to promote excellent research is central to the Government’s vision for the new health and care system, as is protecting confidential information.  This is a complex issue and I am most grateful that Dame Fiona has accepted the challenge - I can think of no better person to complete the review.”


Notes to editors

1.    The Future Forum recommendation, made on January 10, 2012 and subsequently accepted by the Department of Health, was:
“The Government should commission a review of the current information governance rules and of their application, to report during 2012. The aim of the review should be to ensure that there is an appropriate balance between the protection of patient information and the use and sharing of information to improve patient care”.

2.    Dame Fiona Caldicott, DBE, FRCPsych, FRCP, FRCGP, FMedSci, is a psychiatrist and psychotherapist and is currently Chairman of the Oxford University Hospitals NHS Trust. She was previously Principal of Somerville College, Oxford, and also formerly the Pro -Vice-Chancellor, Personnel and Equal Opportunities, of the University of Oxford.   She was President of the Royal College of Psychiatrists from 1993-96 and is a past President of the British Association for Counselling and Psychotherapy. Dame Fiona chaired the original working group, which led to the publication of the Caldicott Report in 1997.

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