Improving end of life care in care homes in Peterborough

The Peterborough Palliative Care in Dementia Group has developed practical tools to improve end of life care for people with dementia, especially those in care homes. This includes:

  • advance care planning
  • a new approach to annual reviews
  • pain assessment and treatment
  • avoiding unnecessary hospital admissions, and
  • other ethically complex areas such as swallowing difficulties, guidance on assessment and treatment of acute agitation.

The documents and protocols are available below. For more information visit www.dementia.jennerhealthcentre.co.uk.

Acute Agitation Guidelines (Peterborough version)
Acute Agitation Guidelines (generic version)
Sample Advance Care Plan
Protocol for use Advance Care Plan
Protocol for use Annual Review Prognostic Indicator Guide
Annual Review Prognostic Indicator Guide
Doloplus-2 Pain Assessment Scale
Protocol for use Doloplus-2 Pain Assessment Scale
Sample End of Life Care Pathway
Doloplus for End of Life Care
Protocol for use End of Life Care Pathway
Allow a Natural Death Form
Protocol for use Allow a Natural Death Form
Allowing a Natural Death Relatives & Carers Information Leaflet
Sample letter to relatives re Allow a Natural Death Form
Protocol for Significant Event Meetings in the Care Home setting
British Geriatric Society response to GP:Care Home alignment proposal
Difficulty swallowing: A practical guide to food, fluid and medication in advanced dementia and end of life for relatives and carers
Recipes for homemade nutritional supplements
Medical Advance Care Planning – The RICH (Remain in the Care Home) Plan
Protocol for use RICH Plan
Medication Review Tool – The ICARUS Grid
Worked example of the ICARUS grid

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