Richard Gleave talks about the increasing interest in dementia

In this audio clip, Director of Programmes and Patient Experience at NHS South of England, Richard Gleave, talks to Alistair Burns about the NHS South of England dementia challenge meeting on 29 May and the increasing interest in dementia as an issue.

Find out more about the dementia challenge.

In Alistair Burns' blog, PM Dementia Challenge

One Response to Richard Gleave talks about the increasing interest in dementia

  1. Sally-Ann Marciano says:

    I am a nurse and also have a father with advanced alzheimers who is cared for at home by my mother. What has become very apparent to me over the last few years is that the care for those living and caring for loved ones with dementia is disjointed and lacks co- ordination. To give you an idea of this the care for my father is provided by many different agencies and services. To discuss his care I have to speak to
    1. Community Mental Health Team
    2. General Practitioner
    3. Community Nursing Team
    4. Social Services
    5. Care Agency (we pay for carers no funding)

    All of the above have input into my fathers care however none appear to work together and what would make it easier for myself and mother is if we had one person who cordinated all my fathers care through these agencies.

    My father was admitted to hospital over xmas as he was unwell, we tried to prevent his admission and called the OOH service to try and get an increased care package to support us at home (he already had a care package in place)
    This was inpossible to achieve due to no carers available, OOH GP did not know my dad so was unhappy to allow him to stay at home. Rapid response team could not be accessed without referall from OOH GP. Community Nursing service in our area is not 24 hours. It then took over 2 weeks to get him back home as unable to arrange care package over xmas period .
    Caring is a very lonely, expensive and isolating experience my mother has to pay for my father incontinence aids, he is funded for 3 incontinence pads a day. My mothers has to pay for incontinence bed pads to protect the bed and also pull up pads as neither are funded on the NHS

    There is no proactive management of this condition and services are a post code lottery where people have access to 24 hour services in other parts of the country. His appointment to see the community consultant psychiatrist was cancelled twice and in the end he was seen by a locum consultant.

    For me it is a constant battle of phone calls, I co ordinate my fathers care and have had to self refer him to the virtual ward. Dementia is not just a social care issue it is also a health care issue and prevention, proactive management of this complex condition is crucial.

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