We know that high quality healthcare, integrated effectively with other required services such as education and social care, is vital for children and young people with long-term conditions and /or disabilities. There is activity already been undertaken to address some of the problems that we all know exist, including:
- relevant outcomes within the NHS and Public Health Outcomes Frameworks
- the extension of Any Qualified Provider to wheelchair and incontinence services for children and young people
- the testing of the ambition within the Special Educational Needs and Disability Green Paper by pathfinder areas to develop a single assessment and single health, education and care plan.
The development of the Children and Young People and Young People’s Health Outcomes Strategy offers a real opportunity to drive further improvements. To help us with this, we want to hear from you on the following questions as they relate to children with long-term conditions and / or disabilities:
- Where is the health service falling short for children and young people – what is our weakest link and what can we do to improve things to make sure it makes a real difference to the lives of children and young people?
- With so many different parts of the health system in place, what do they need to focus on and improve to make sure they each work together to deliver the best possible health service for children and young people?
- The NHS and Public Health Outcomes Frameworks propose key areas of focus: making sure everyone lives healthy lives for longer, addressing inequalities, enhancing quality of life for people with long term conditions, helping people recover from ill health or following an injury, ensuring people have a positive experience of care, treating and caring for people in a safe environment and protecting them from harm – are these the right priority areas in relation to children and young people’s health outcomes? Is there anything missing?
See outcomes specific to children and young people in these frameworks
- What should key health outcomes for children and young people include?
The Forum’s work on disabilities and long-term conditions is led by Colin Green and Gillian Baird.