Read transcript of webchat on improving health and care for children and young people

The transcript from the recent webchat with Professor Ian Lewis, co-chair of the Children and Young People’s Health Outcomes Forum, is now available to read below.

Professor Lewis, who is Medical Director at the Alder Hey Children’s NHS Foundation Trust, responded to questions and comments about those areas where people think that additional health outcomes for children and young people are needed.

The Children and Young People’s Health Outcomes Forum is an independent group of experts from local government, the NHS and charities that is helping to develop a new strategy for improving care for children and young people.

In Children and Young People’s Health Outcomes Forum, Conversations, News | Tagged ,

9 Responses to Read transcript of webchat on improving health and care for children and young people

  1. Jayne Dillon says:

    I have had to fight every step of the way to get help for my 7 year old. He has selective mutism which I believe is a manifestation of ASD (sibling with Asperger Syndrome). I have had to involve my MP, meet with Lead Commissioner of Mental Health & write a 6 page fully referenced letter explaining the implications of doing nothing & the cost of picking up the pieces at a later date. We were refused assessment for CAMHS because I filled in the check list honestly. CAMHS, Community Paeds, SLT, LEA, CYPS, schools all need to work TOGETHER to support children. I have experienced departments trying their utmost to wriggle out of seeing a child. This has huge financial implications – my eldest was diagnosed with AS at 18 after a breakdown, has just spent 12 weeks in the ADRU in Beckenham for severe OCD. If this had been picked up in childhood this would not have happened. These children are usually extremely intelligent/talented & have a huge amount to contribute – given appropriate help. I must add that once we forced access to the system the professionals we encountered were superb. Just seems to be a culture of turning away as many as possible. I am perfectly capable of fighting for my child – lots of parents are not.

  2. Maria Catterick says:

    Children with FASD are falling into a black hole of provision and experience poor outcomes. How do you think this will be addressed through your strategy for improving outcomes?

  3. Gwenda Wedge says:

    In my experience there is huge inconsitencies in help between different PCTs. My child is Selectively Mute, in some areas they would receive support and help from either CAHMS or the Speech Therapists. Where we live the Speech Therapists say its not in their remit and CAHMS say ‘they will grow out of it’. Selective Mutism is an anxiety disorder, it is highly treatable using standard behavioural techniques. However, we have lost in the post code lottery and we are left tackling this on our own. Surely consistency of services is the first requirement?

  4. Antoinette Myburgh says:

    I am interested in the outcomes around disability. It appears that the main focus is on health outcomes, but for disabled children, there are outcomes in relation to Education and Social Care too.
    How will the outcomes strategy address a more integrated outcomes framework for this population? How will we know that services have made a difference to children’s lives.
    There are also varying degrees of disability, how will the strategy reflect this?

  5. Ben says:

    I would like to see the introduction of school dental and medical care.

  6. Gabrielle Bateman says:

    Care Pathways need to established and carried out in all areas of differing needs with essential training given to professionals who need it. There is still very poor understanding and no established care pathway for selective mutism in both children and adults. Despite recent NICE guidelines conditions such as Autistic Spectrum Conditions, ADHD and Dyspraxia are left open to the post code lottery. Quite simply children and famillies are being failed.

  7. Tracy Aldhouse says:

    map of medicine has been of great help in continuing education of healthcare professionals however there is a serious lack of shared knowledge between different departments and an overall national strategy on some conditions. We have NICE but this is not used effectively through out the service. For a child with has down syndrome the different levels of care through out the country is very bad. The sharing of knowledge on key issues including audio, ent and especially respiratory is lacking. It is a pot luck for where you live and the professionals education and “interest” levels. The acknowledgement from the medical community of need of the sharing of knowledge would be an excellent starting point and the introduction of a government lead patient forum to ensure parents are fully informed to push if needed the medical community is essential.

  8. Becky Stack says:

    I want every person in the medical and teaching profession, along with all social services to be educated about the severe anxiety disorder selective mutism. I’m now 25 and been failed all my life with all these so called professionals. I’ve still got SM which as now developed into other issues. I’ve been bullied mistreated and misdiagnosed by them all. SM needs to be known now just as well as autism so children can get the right treatment to overcome SM. I don’t want any other child sufferer to go through what I had to. What is going to happen about this?

  9. Web editor@DH says:

    This page is now closed to comments. But if you would like to give your views on children and young people’s health outcomes, please join the conversations on the Forum’s web pages or use one of the feedback forms.