You are here: Talk > Blogs > Carers blog >

Caring for Jasmine

by Patricia CarersDirect on 27 March 2011

 

It’s been a while since I’ve blogged for the Carers Direct team, but I’m only too happy to do so now, as I’ve got something very exciting to write about!

Last year we embarked on a mission to find a caring family. We wanted to try to show what life is really like for carers. We thought we could do this by giving a family a video camera and asking them to record their daily lives – their highs and lows, their struggles and triumphs. We knew this would only reflect one family's experience, but it would show a small sample of things carers do day-in and day-out.

It was easier said than done, and we searched across the country for a family to undertake this task. We realised that we were asking a lot of a family already under pressure from their caring roles. We knew it would be a very special family that would agree to get involved.

Thankfully, with the help of a local branch of the National Autistic Society, we met Marie and Alan and their two daughters, Jasmine and Paris (now aged 16 and 14). Jasmine has autism, scoliosis, dyslexia and dyspraxia.  As a family, they work together to make life as comfortable as possible for her. They’ve been through a lot of hard times in trying to get Jasmine the support she has needed, but they have also learnt a lot along the way, and as mum Marie says, they can see the light at the end of the tunnel.

That’s why they decided to put their lives on film – they’ve been there, they’ve done that, and they have learnt valuable lessons that they wanted to share with others. They also thought it would be ‘therapeutic’ for them as a family, to talk about their feelings and experiences.

They had the camera for about six weeks (with some additional filming support from us) and they were able to capture their thoughts on everyday life, from the things they do for and with Jasmine each day, to them all going out as a family, and the steps they take to make sure everyone has a good time.

From this we’ve made seven episodes under the title ‘Caring for Jasmine’. Each film covers a different topic, such as diagnosis, relationships and going places. They are going to be released one by one on our NHS Choices YouTube channel leading up to World Autism Awareness Day, Saturday 2 April 2011. If you can’t wait to watch each episode, they’ll also be available at our Real stories hub.

Jasmine herself asked not to be filmed, but she is as much as part of this series of films as the rest of her family. We had a great time working with a wonderful family, and hope everyone enjoys the films as much as we enjoyed making them.

If you'd like to leave a comment, please feel free to do so below, or on the Carers community forum. We also have more than 7,000 friends on our Facebook page now - you can post your thoughts and comments there as well.

Take care, 

Patricia.

 

 

Comments

Our rules

No Comments

Share this page


Carers' questions answered in the Carers Community

Advisors from the national Carers Direct helpline are constantly monitoring the Carers Community forum waiting to answer questions on legal, financial and other issues affecting carers. If you've got a problem and don't mind sharing it, they can offer some help.

Are you a carer? Join the blog

The carers blogWe're looking for more carers to tell their stories in the carers blog. So if you want to share your experiences of being a carer and hopefully help others, download the registration form, follow the instructions and we'll set you up.

The carers bloggers

Shelley121 looks after her husband who has bipolar disorder and Borderline Personality Disorder
Kendra27
is 27 and has been caring for her partner with mental health problems and gender identity disorder since 2006
The Mother feels that after 26 years as a carer, 'The Mother' is the only identity that she is really allowed
ned ludd, carer
has a grown-up son with learning and physical disabilities, who needs 24 hour care. He wants to change the culture of caring to focus less on bureaucracy and 'box-ticking'
Anthony1
has cared for his wife, who has Alzheimer's, for 13 years. He would like to hear from people in a similar situation
Wonderwoman1 cares for her husband, who has a back injury, and her 2 children who both have autistic spectrum disorder
Tony
aka User145767 is a full time carer for his daughter 'G' who has Downs Syndrome.

Scribbler John
 
cares for his Dad, who has had a stroke, and his Mum who has mobility problems
Hazel
  cares for her 90 year old husband who has Parkinson's disease and diabetes
Deborah Packenham
has a son with autism and is National Autistic Society (NAS) Branch Officer for Barnet
Sam S is a youth and community worker for The Princess Royal Trust for Carers
Kerry Page has 4 children between aged 20 and 10. Her youngest two boys are both severely disabled with Fragile X Syndrome and autism
Wendy1 is from Chill4usCarers

More information:


The opinions expressed by the bloggers are their own not those of the NHS. If you have any concerns about your health or of those in your care you should contact your GP or use our medical advice now section.

Search this section

On NHS Choices