Patient and Public Engagement Resources

This page provides an opportunity for SHAs, PCT collaboratives/alliances and individual PCTs to share their practice around patient and public engagement and world class commissioning. Please contact Rachel Hinde or pctportal@institute.nhs.uk to make any additions.

National Social Marketing Centre

The National Social Marketing Centre Website holds information about support and advice offered as well as case studies.  This month they are showcasing a case study from Greenwich PCT on smoking cessation. 

Understanding what matters: using patient feedback to transform care

The Department of Health published this guide on 22 May, setting out best practice in terms of collecting, analysing and using patient feedback to transform services. It also includes examples of how the NHS is already using feedback from patients to get results.  It is one of a number of tools being produced to help services understand and respond to what really matters to patients and their experiences of care.

Patient and Public Involvement Solutions newsletter

The latest edition of the newsletter is now out.  Click here to see it.

National Voices - report on patient involvement in commissioning

Government attempts to involve patients and the public in local health services are failing according to a new report launched 18 February by the Royal College of Nursing and National Voices.

The report - Local healthcare commissioning: grassroots involvement?- reveals that many patients feel local healthcare commissioning (LHC), the process intended to ensure health and care services effectively meet the needs of the local population by engaging with patient representatives, is not working effectively.  The report makes recommendations in response to its findings.  Follow the link above to learn more.

Izwe Engagement Leadership Scheme

The Izwe Leadership Scheme 09 is a unique opportunity to work with some of the world’s leading engagement thinkers and practitioners. And it is an opportunity to pool resources, make a big difference to four organisations and significantly improve participation practice. Izwe is a new social enterprise that reinvests 15% of profit back into the community annually. Izwe has been founded to create a step change in how organisations engage internally and externally.

In 2009 Izwe is looking for four UK based public bodies to work with to support a radical improvement in the engagement performance of each partner organisation, as well as help each partner tackle a specific policy or service delivery challenge they are facing.

Expressions of interest were requested by Izwe by 28 February.  For further information see the  brochure (brochure1.09 MB).  

NHS Norfolk's guide to setting up patient participation groups

This guide to setting up Patient Participation Groups for General Practice and Patients has been developed by Rebecca Champion from NHS Norfolk.  Please feel free to share this locally, making sure NHS Norfolk is recognised as the source.  The guide is available  here (here150.51 KB).

Resources to help you

In November 2008 Jenny De Ville asked members of the CHAIN PPI sub-group if they could identify relevant web-based resources and toolkits they found helpful. The attached is a compilation of the information she received, which we hope you will find useful/interesting.  Click to access the document. (Click to access the document.49.27 KB). 

What other resources can you identify? - there are some already on this page and I will continue to add items I come across.  If you have anything you'd like to share or have come across something that helps you please email me: Rachel Hinde

Directions on duty to report on consultation

You may be aware that there is likely to be a delay in publishing the Directions for the Duty to Report on Consultation.

Although the first reports are not due before September 2010, the SHAs have agreed with the Department of Health that it would be helpful to provide some information about  expected content and requirements so that PCTs have as much notice as possible and are able to start putting in place any arrangements that may be required from April. Here are the two slides that outline expected content and requirements for the reports on consultation.  Click here to view the slides. (Click here to view the slides.48.50 KB)

South Central PCT Alliance WCC programme

In the South Central region there is a programme for world class commissioning, led by the nine PCTs, to build, share and procure on key strategic work streams. The toolkit is a culmination of effort from all the PPI leads in the 9 PCTs with external support and is a product of the South Central PCT Alliance WCC Collaborative Programme: PPI work stream. It is intended to support commissioners in engaging and involving patients and demonstrates how to put into practice; 'Strengthening Accountability'. For more information please contact Michaela Firth on 07500 915128 or by email michaela.firth@mkpct.nhs.uk.

South Central PCT Alliance's PPE toolkit (South Central PCT Alliances PPE toolkit 2.67 MB)


If there is demand from SHAs and PCTs, we will seek to provide an interactive service, when you can post your own practice and comment on each others offerings. If you have comments on how this could be developed please contact pctportal@institute.nhs.uk.

Real involvement - guidance published

The Department of Health has published guidance particularly relevant to commissioners on section 242(1B) of the NHS Act 2006, the duty to involve and good involvement practice.  This document provides statutory guidance for NHS organisations on the updated duty of involvement and advice about the new duty of reporting on consultation and best practice on embedding involvement in organisations. 

The NHS Centre for Involvement has produced a guide for commissioners and providers that provides a step by step process to implement an effective system of patient and public involvement in urgent care.

Developing patient and public engagement to support commissioning

The Department of Health is seeking your views on the e-cycle – a way of approaching Patient and Public Engagement (PPE) in World Class Commissioning. The e-cycle is intended to be useful for commissioning organisations, for example, primary care trusts, practice based commissioners and those involved in collaborative commissioning decisions.

The  e-cycle model (e-cycle model503.71 KB) has been developed by David Gilbert, Director of InHealth Associates, on behalf of the Department of Health. It is based on work carried out with Croydon PCT.

David Gilbert and the Department of Health have been collecting views on whether the e-cycle is useful and/or how it can be made more useful. if you have any comments on the framework or these Questions (Questions53.33 KB) please send them to David Gilbert.