Future Forum: have your say

The Future Forum wants to listen to as many people as possible and take comments on four areas of policy development:

How to take part

You can also write to:
NHS Future Forum
Room 602A, Skipton House
80 London Road
London, SE1 6LH

Hold your own listening event

Why not hold a listening event in your own organisation or team? A slide pack has been designed to help you run a productive event.

The slide pack sets out the key questions for each of the four workstreams and the feedback form will allow you to submit your work directly to the Future Forum team.

The Future Forum will base its advice to the Department of Health on what it hears during engagement and listening events. It has set up a system for collecting and analysing feedback that will ensure every viewpoint is captured.

To ensure that your views help shape the Future Forum’s advice to the Government, please send your views on education and training, information and the NHS’s role in the public’s health by 31 October 2011. Please make sure that we receive your responses on integrated services by 18 November 2011.

Note: this page was updated on 18 October 2011 to reflect the extended deadline for comments of 31 October.

In NHS Future Forum

14 Responses to Future Forum: have your say

  1. Rod Whiteley says:

    Terrible slides, crammed full of words. If I did want to run a listening event I certainly wouldn’t use them as they are.

    • Sue Lygo says:

      I completely agree. Far too many words on each slide and each question beginning “How…” is not helpful.

  2. John Yates says:

    I agree with Rod ( above) . This is typical of governments ( local and national) inability to communicate in a form of English that is easily understandable by everyone. If Government documents and in particular those designed for public consultation were phrased in Crystal-mark T English then perhaps they would at last get informed responses.
    My personal experience with local government and Primary Care Trusts is that they aim to confuse. This way they achieve what they want as the public is bemused bewildered and generally bu**ered and democracy does out of the window.

  3. Mike Hope says:

    Having been involved for some while in trying to set up forums around the country to raise awareness on brain injury (the true numbers and epidemiology, rather than the fiction the DH ties to preserve, the benefits of timely focused rehabilitation, the need to look at the patient and family experience in terms of a continuing pathway or journey), I would stress the need for our masters to genuinely listen.

    Rather than telling us what to do, or being seen to hatch initiatives willy-nilly to prove political virility, they need to fully appreciate what it is like to be a patient trying to navigate an alien system, or to be a family desperately trying to come to terms with what has happened and to look at what might come next. They need to know how alone and without guidance people often feel, and how they really benefit from professionals who stay with them for much of their journey, who are honest with them, who help illuminate choices, and who try to empower them. They need to know that networks, forums and peer support are infinitely better than top down edicts and grand plans.

  4. eileen pearson says:

    My first experience of a very important relative being hospitalised in Yorks. has been the worst nightmare of my life. The consultant in charge of her care appeared only to want to get rid of her — either transfer to a nursing home or discontiue treatment! Almost anything to reduce case load and free up another bed, sounds incredible — seems the Mental Capacity Act that the consultant quoted was not fully understood by the consultant nor anybody else that I have tried to contact– including the director of medicine of the hosp. nor the nurses, drs. incharge of her case and yet they were happy to quote the act to enforce their decision to withhold treatment, nutrition and hydration — the fact that I asked “awkward” questions staved off the immediate actions but then deviously they carried this out. I was refused meetings by the Chief Executive, Director of medicine and the consultant in charge of her case. I am so sad that I could not help my relative more– due to an extrordinary lack of dialogue.

    • Rod Whiteley says:

      It sounds like you have grounds for a formal complaint there. You might find it useful to contact your ICAS service: http://www.carersfederation.co.uk/contact-icas/

      Independently, you might want to place the matter on record at: http://patientopinion.org.uk/

      And, independently of both, the LINk that covers the hospital might want to look into the wider issues: http://www.nhs.uk/nhsengland/links/pages/findingyourlink.aspx

      One day, perhaps, a nice easy single point of contact for all those might be a good idea.

    • Catherine Gleeson says:

      As a nurse in Yorkshire I feel your experience is totally unacceptable. Please do as other respondents have advised – make a formal complaint via PALS. Also take it to your Local Involvement Network (LINKs) as it is unlikely to be a ‘one off’ bad episode of care. LINKs can gather evidence on patients’ and carers’ concerns and they raise these with healthcare providers.
      Patients’ complaints and concerns are a key part of quality assurance – you could also check the Hospital’s Quality Account. QA’s are available to the public – you could check whether patient dignity and safety are a priority of that hospital.

  5. Joanna Wright says:

    The waste in resorces from the constant service delivery changes beggers belief. If you really want to know how it feels to be blind then you are going to have to lose your sight. Not advisable. If you want to know what would make life alot better for someone without sight then ask them. Not by making plans that they then have to fit in with and will turn out to be useless. Not by asking a bunch of people who are interested in the NHS but are fully sighted and not by taking these ludicrous traveling shows around and around in an attempt to justify the unjustifiable which is ignoring vulnerable people and keeping a nice fat wage.

    • Rod Whiteley says:

      Well said. That’s exactly why lots of us are now working on setting up local HealthWatch to ensure that vulnerable people are listened to, that plans don’t turn out to be useless, and that service delivery changes result in better outcomes instead of more waste.

  6. Charles Elliott says:

    We seem tyo be going around in ever decreasing circles with words, words, more words, meetings, forums, questions more questions. But, so far, no answers.

    Wouldn’t it be better to simply concentrate on just one or two things (easier making an appointment, shorter waiting for instance) then when, if ever, we get these right, we move on ?

  7. Mrs.josephine Hyde-Hartley says:

    Thanks very much for providing this message box. In my view as an ordinary member of the public all four themes of policy development should be all the better when everyone concerned kindly stops seeking to find or invent so-called issues associated with this thing called health and well being and it’s provision. In fact, as an interesting exercise I should hereby like to challenge all those working in this field to try and get through a conversation with an ordinary member of the public without mentioning the word “issue” even once. Avoiding inappropriate and unnecessary issues is very important from the tax-payers point of view. Better ie non-scary conversations between the public and health care workers, together with clearer directions all round should help get rid of the usual frustrations that are spoiling all our work/life balances. Personally I think it’s high time we put so-called compensation culture firmly in it’s proper place ie not in my face or future as an ordinary member of the public. please.

  8. karen steven says:

    The increasing numbers of older people and the increasing pressure to care for them in the community means that more resources are needed in primary and social care

  9. Barbara Schaefer says:

    The problem that seems to stand in the way of improving outcomes for patients (and what else is the NHS about?) in my view is, that when push comes to shove, coroporate identity is put over patient outcomes.
    I worked as a locum social worker in a NHS mental health unit and was served with a detrimental reference after I left, as I had raised critical questions concerning the care of longterm patients – in 2011. Never mind the Whistleblowing Law.

  10. Millie Kieve says:

    While doctors and other health professionals are being encouraged to talk to patients about lifestyle, may we please request that they explain the risks of harm versus benefit of medicines they prescribe. Iatrogenic (treatment induced) illness is a serious public health problem. Long term adverse effects of drugs including fluoroquinolone antibiotics and lipid lowering drugs are not explained to the patients in many instances.

    Admissions to hospital due to adverse drug reactions (ADRs) increased over 10 years by 76.8% and deaths due to ADRs after admission rose by 10%. Imperial College researchers found from hospital admission statistics.

    The Medicines regulator MHRA recommend that people suffering withdrawal problems from antidepressants, should consult and expert. Sadly there are no ‘experts’ available in most areas.
    Doctors and patients have been let down, due to lack of training.
    Pharmacology and therapeutics has not been a compulsory subject for medical students having been removed from the guidelines on medical education by the General Medical Council since 1993.

    At the charity APRIL we are helping people with withdrawal protocols that the government should be providing as many people are suffering and unable to withdraw from drugs they no longer need. Support to come of benzodiazepines, SSRI and similar antidepressants and Z drugs and pain killers with codeine is not available for many people. Most who contact us, were not warned of the problems they would face.
    Millie Kieve http://www.april.org.uk