Patients and clients give staff in health and social care personal and confidential information about themselves all the time and they trust that we will protect the information they give.  As we move to a more electronic age, where information can be shared more easily, and across many more types of organisations, the Government accepted the Future Forum’s recommendation for a review of the balance between protecting patient information and its sharing, to improve patient care.  The term used to describe how we manage this is ‘Information Governance’.

Dame Fiona Caldicott has been leading this review with an independent panel of experts, on behalf of the secretary of state.  The panel was asked to make recommendations on the balance between sharing personal information and protecting individuals’ confidentiality taking into account; how to ensure that we improve the sharing of personal information to support the care of individuals; enable the further use of information more widely to improve health and social care services; protect individuals’ confidentiality and respect their wishes in relation to how their information is used.

We would like to thank everyone who has taken the time to contact us.  See the news items below for more information or follow us on twitter @caldicott2

News

Panel discussion on linkage

The panel is holding an information gathering day on linkage on Wednesday 19 September and has drawn up a list of questions to guide the discussions.   The panel welcomes contributions to this discussion.

Panel discussion on children and families

The panel is holding an information gathering day in children and families on Wednesday 12 September and has drawn up a list of questions to guide the discussions.  If you would like to contribute to the debate, please email or … Read more → – Panel discussion on children and families

hearing the views of citizens, patients and carers

Would you like to contribute to recommendations to the Secretary of State for Health on how to improve the way information is shared in health and social care? We are holding a series of workshops over the summer centred around … Read more → – hearing the views of citizens, patients and carers

Scope of the review agreed

At its last meeting, the panel agreed the scope of the review and it can now be found on the page that explains how the review is operating.  

Hearing the views of citizens, patients and carers

Would you like to contribute to recommendations to the Secretary of State for Health on how to improve the way information is shared in health and social care? We are holding a series of workshops over the summer centred around … Read more → – Hearing the views of citizens, patients and carers

Data sharing between public bodies

One of the panel members looked at a Law Commission project on data sharing between public bodies . The paper below is a summary of that work. Note that the panel decision was to support the proposal Law Commission brief

ICO consultation on anonymisation code of practice

One of the panel members looked at the Information Commissioner’s Office consultation on a draft anonymisation code of practice with a view to avoiding duplication of effort. The paper below is a summary of that work. Note that the panel … Read more → – ICO consultation on anonymisation code of practice

Use of “necessary and expedient” in the Health & Social Care Act 2012

One of the panel members recently took legal advice on the use of the words necessary and expedient in the Health and Social Care Act 2012 . The paper below is a summary of that work. Note that the panel … Read more → – Use of “necessary and expedient” in the Health & Social Care Act 2012

Evidence session on consent and control

The panel held an evidence gathering session on consent and control on Wednesday 18 July. The questions they considered are posted below. You are welcome to submit any further evidence on this theme or any other area of concern to the … Read more → – Evidence session on consent and control

Interview with Dame Fiona Caldicott

We are delighted to be able to share a video record of John Carvel, a member of the information sharing review panel, in conversation with Dame Fiona Caldicott.  They discuss her previous review, what has changed in the interim period … Read more → – Interview with Dame Fiona Caldicott