Information about me and my care

Making it easier to look at and share your health and care records will support you to take control of your own care and work with professionals to make sure that there is ‘no decision about me without me’.

New technologies will help us all to get more involved with how health and care services are run.

However, we want to make sure that your confidential information is kept safe and you can say who can look at it.

Things that will happen:

  • Health and care professionals and organisations will be asked to make sure they keep clear records about your health care.
  • They will make sure that your right to have access to your records and information about you is supported.
  • We will be able to see our GP records online by 2015. In time we will be able to see other records about our care online.
  • Commissioners and providers will be expected to make sure that anyone who needs it gets support to access and understand information about their health and care.
  • This will ensure they have an equal say and can be active in their own health care.
  • Information in our care records will be kept safe and confidential.

What this means for me

To find out more you can read the full information strategy or find out what this will mean for you as a patient, carer or health and care professional.

Case studies

Below are some case studies demonstrating examples of good practice already taking place…

This is me – a snapshot of the person with dementia

This is me is a leaflet produced by Alzheimer’s Society to help people with dementia to receive person-centred care, particularly if they are admitted to hospital. It is a simple and practical tool that someone going into hospital can give … Read more → – This is me – a snapshot of the person with dementia

Building on the principles of self-directed suppport

Your Way is a new way of working built around the principles of self-directed support. It is both an approach to support and a business model for providing services to individuals under personalisation. It is: A replicable business model for … Read more → – Building on the principles of self-directed suppport

Creating your own electronic health record with Patients Know Best

patients-know-best1

Patients Know Best is a patient-controlled medical records system, and the first to be integrated into the NHS ‘N3’ network. Patients can use the system to create a personal electronic health record account and grant clinicians access to that account. … Read more → – Creating your own electronic health record with Patients Know Best

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Online health records for SLaM’s mental health patients – MyHealthBox

MyHealthBox

South London and Maudsley (SLaM) foundation trust has launched an online health record that gives service users meaningful access to their records as well as allowing them to contribute to the system directly. The open patient record has been developed … Read more → – Online health records for SLaM’s mental health patients – MyHealthBox

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Renal patients share their diagnosis and treatment information using Renal PatientView

Renal PatientView was set up by the Renal Information Exchange, a partnership of patient groups, professional bodies and renal registries. It provides online access to renal patients’ diagnosis, treatment, and their latest test results. Patients can share this information with … Read more → – Renal patients share their diagnosis and treatment information using Renal PatientView

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Patients take more control over conditions with access to GP records at Wells Park Practice

Wells Park Practice has been offering patients free online access to their general practice records for some years. Patient and practice reactions include: Patient: “Having broken my right shoulder twice and being treated by two different hospitals, I was able … Read more → – Patients take more control over conditions with access to GP records at Wells Park Practice

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Access to GP records makes life easier for Dr Amir Hannan’s patients

Dr Amir Hannan has actively pioneered patient access to records in his practice in Greater Manchester in order to be completely open and transparent with his patients. There have been other advantages – research with Tameside and Glossop PCT shows … Read more → – Access to GP records makes life easier for Dr Amir Hannan’s patients

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Residents and relatives access online care plans in Graham Care Group homes

Following initial trials at Rodwell Farm Nursing Homes, all residents in the Graham Care Group homes, their relatives and friends, can now access securely current care plans and daily reports via email, internet, iPhone etc. Designated contacts can receive text … Read more → – Residents and relatives access online care plans in Graham Care Group homes

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