Blogs

Pro-Active Care model – Dr Tuan Nguyen

When I was a GP in Liverpool, I developed the Pro-Active Care (PAC) model. The foundation of the model is to place the individual at the centre of all decision making. Individuals and their carers/families are supported by a wraparound … Read more → – Pro-Active Care model – Dr Tuan Nguyen

Creating more mature relationships between professionals and users of services – Bernd Sass, Disability Rights UK

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Disabled people and people with long term conditions are experts and masters in improving their life chances and other outcomes.  Every condition is both a crisis and an opportunity to reassess life, set new priorities and – most importantly – … Read more → – Creating more mature relationships between professionals and users of services – Bernd Sass, Disability Rights UK

Occupational therapists and the long term conditions agenda – Amy Edwards

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Work to produce the long term conditions strategy has highlighted a number of key challenges. One is how to deliver integrated services, so that the person with one or a number of long term conditions experiences understanding and continuity in … Read more → – Occupational therapists and the long term conditions agenda – Amy Edwards

We do it already… don’t we? – Simon Eaton

As clinicians working with people with long term conditions, we are all patient-centred aren’t we? It’s hard to imagine anyone coming to work intending not to listen to their patients or aiming to ignore their thoughts or ideas. And yet, … Read more → – We do it already… don’t we? – Simon Eaton

Adapting to life with long term conditions – Anya de longh

I am a 22 year old with 3 long term conditions diagnosed in the last 18 months: Chiari malformation, Postural Orthostatic Tachycardia Syndrome and Ehlers-Danlos syndrome. These conditions have had an enormous impact on my whole life. I have been … Read more → – Adapting to life with long term conditions – Anya de longh

Time to tackle the artificial divide between physical and mental health – Sean Duggan

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People with long term physical conditions are the most frequent users of the NHS. Long term physical illnesses affect some 30% of the population of England, or some 15 million people. Mental health conditions, meanwhile, affect about 10 million of … Read more → – Time to tackle the artificial divide between physical and mental health – Sean Duggan

Living with Alzheimer’s – Q and A with Christopher and Veronica Devas

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Christopher My name is Christopher Devas and I have Alzheimer’s. It was confirmed 4 years ago. Early diagnosis is the key. What has made things better for you living with a long term condition? A long term condition is a … Read more → – Living with Alzheimer’s – Q and A with Christopher and Veronica Devas

A story about long term conditions – Alf Collins

A doctor I know recently took over another clinician’s practice when they retired. He was apprehensive before he started; he was taking over from a predecessor who worked with people with long term conditions and many of them had been … Read more → – A story about long term conditions – Alf Collins

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How the Year of Care programme can improve services for people with long term conditions – Sue Roberts

The Year of Care (YOC) programme has shown how to deliver services systematically for people with long term conditions, in a way that emphasises support for self management. It provides the practical and tested model for a new approach to … Read more → – How the Year of Care programme can improve services for people with long term conditions – Sue Roberts

Harnessing patient voices – Don Redding, Director of Policy, National Voices

Long term conditions are not ‘managed’ by health, social care or other government services, but by the people who live with them. For us and our carers, this is a 24/7 reality. As long as we maintain independence, our contact … Read more → – Harnessing patient voices – Don Redding, Director of Policy, National Voices