Patients and clients give staff in health and social care personal and confidential information about themselves all the time and they trust that we will protect the information they give.  As we move to a more electronic age, where information can be shared more easily, and across many more types of organisations, the Government accepted the Future Forum’s recommendation for a review of the balance between protecting patient information and its sharing, to improve patient care.  The term used to describe how we manage this is ‘Information Governance’.

Dame Fiona Caldicott has been leading this review with an independent panel of experts, on behalf of the secretary of state.  The panel was asked to make recommendations on the balance between sharing personal information and protecting individuals’ confidentiality taking into account; how to ensure that we improve the sharing of personal information to support the care of individuals; enable the further use of information more widely to improve health and social care services; protect individuals’ confidentiality and respect their wishes in relation to how their information is used.

We would like to thank everyone who has taken the time to contact us.  See the news items below for more information or follow us on twitter @caldicott2

News

Data sharing between public bodies

One of the panel members looked at a Law Commission project on data sharing between public bodies . The paper below is a summary of that work. Note that the panel decision was to support the proposal Law Commission brief

ICO consultation on anonymisation code of practice

One of the panel members looked at the Information Commissioner’s Office consultation on a draft anonymisation code of practice with a view to avoiding duplication of effort. The paper below is a summary of that work. Note that the panel … Read more → – ICO consultation on anonymisation code of practice

Use of “necessary and expedient” in the Health & Social Care Act 2012

One of the panel members recently took legal advice on the use of the words necessary and expedient in the Health and Social Care Act 2012 . The paper below is a summary of that work. Note that the panel … Read more → – Use of “necessary and expedient” in the Health & Social Care Act 2012

Evidence session on consent and control

The panel held an evidence gathering session on consent and control on Wednesday 18 July. The questions they considered are posted below. You are welcome to submit any further evidence on this theme or any other area of concern to the … Read more → – Evidence session on consent and control

Interview with Dame Fiona Caldicott

We are delighted to be able to share a video record of John Carvel, a member of the information sharing review panel, in conversation with Dame Fiona Caldicott.  They discuss her previous review, what has changed in the interim period … Read more → – Interview with Dame Fiona Caldicott

Submitting evidence to the panel

The panel are holding a series of meetings to hear evidence during the summer and early autumn. While sessions have already been held on a number of themes including commissioning and public health, the panel does continue to welcome further evidence on … Read more → – Submitting evidence to the panel

Evidence session on adult social care (including vulnerable adults)

The panel held an evidence gathering session on adult social care on Wednesday 4 July.  You are welcome to submit any further evidence on this theme or any other area of concern to the review team. More information on this … Read more → – Evidence session on adult social care (including vulnerable adults)

Evidence session on research

The panel recently held an evidence gathering session on research. You are welcome to submit any further evidence on this theme or any other area of concern to the review team. More information on the research evidence day Full list … Read more → – Evidence session on research

Evidence session on public health

The panel is holding an evidence gathering session on public health on Wednesday 27 June. The questions they will consider are posted below. You are welcome to submit any further evidence on this theme or any other area of concern … Read more → – Evidence session on public health

Evidence session on commissioning

The panel recently held an evidence gathering session on commissioning. The questions they considered are posted below. You are welcome to submit any further evidence on this theme or any other area of concern to the review team. Commissioning Panel … Read more → – Evidence session on commissioning