End of life care

Objective 12: Improved end of life care for people with dementia.

People with dementia and their carers should be involved in planning the way they are cared for towards the end of their lives – in line with Department of Health’s End of Life Care Strategy. Local work done in this area should also consider the dementia aspect.

Safeguarding adults at risk of harm: a legal guide for practitioners

This guide produced by the Social Care Institute for Excellence is aimed primarily at practitioners working in various settings for organisations involved in safeguarding. It is intended to serve as a pointer to the law and to how it can be used. Read more → – Safeguarding adults at risk of harm: a legal guide for practitioners

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End of life care resources

A list of useful resources to support end of life care for people with dementia. Read more → – End of life care resources

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Achieving quality environments for care at end of life

This guide identifies a number of key environmental principles to help improve privacy and dignity for patients and relatives. Read more → – Achieving quality environments for care at end of life

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Improving end of life care in care homes in Peterborough

The Peterborough Palliative Care in Dementia Group has developed practical tools to improve end of life care for people with dementia, especially those in care homes. Read more → – Improving end of life care in care homes in Peterborough

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Admiral Nurse led life story work in care homes

This project supported by the Foundation of Nursing Studies (FoNs) and Dementia UK involved the facilitation of life story work within 7 NHS Older Adult Mental Health in-patient areas. Read more → – Admiral Nurse led life story work in care homes

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Greater Manchester end of life care initiative

This initiative aims to deliver education, training and improvement in the quality of care received by older adults with dementia in a care setting when coming to the end of their lives. Read more → – Greater Manchester end of life care initiative

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Communicating well

A list of useful resources about how to communicate well with people living with dementia. Read more → – Communicating well

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End of life care for people with dementia commissioning guide

This guide provides support for the local implementation of NICE clinical guidelines through commissioning integrated end of life care services for people with dementia. Read more → – End of life care for people with dementia commissioning guide

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Flowchart to support end of life care planning

This flowchart was produced by the End of Life Care Modernisation Initiative at St Thomas’ Hospital, and is intended to support health and social care professionals when they talk to patients with advanced dementia about future care planning. Read more → – Flowchart to support end of life care planning

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Recommendations from a research report on end of life care in dementia

This report is the result of a research project undertaken by the University of Bath, and is based on the opinions of people with advanced dementia, their family and professional carers, on promoting well-being during the last months of life and on good terminal care. Read more → – Recommendations from a research report on end of life care in dementia

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