Patients and clients give staff in health and social care personal and confidential information about themselves all the time and they trust that we will protect the information they give. As we move to a more electronic age, where information can be shared more easily, and across many more types of organisations, the Government accepted the Future Forum’s recommendation for a review of the balance between protecting patient information and its sharing, to improve patient care. The term used to describe how we manage this is ‘Information Governance’.
Dame Fiona Caldicott is leading this review with an independent panel of experts, on behalf of the secretary of state. The panel has been asked to make recommendations on the balance between sharing personal information and protecting individuals’ confidentiality taking into account; how to ensure that we improve the sharing of personal information to support the care of individuals; enable the further use of information more widely to improve health and social care services; protect individuals’ confidentiality and respect their wishes in relation to how their information is used.
We want to hear from patients, professionals, experts and citizens. While organisations have been writing to us and some meetings have already taken place, more are planned and we welcome input from everyone by post or email until 16 September. See the news items below for more information or follow us on twitter @caldicott2
The panel is holding an information gathering day in children and families on Wednesday 12 September and has drawn up a list of questions to guide the discussions. If you would like to contribute to the debate, please email or … – Panel discussion on children and families
Would you like to contribute to recommendations to the Secretary of State for Health on how to improve the way information is shared in health and social care? We are holding a series of workshops over the summer centred around … – hearing the views of citizens, patients and carers
At its last meeting, the panel agreed the scope of the review and it can now be found on the page that explains how the review is operating.
Would you like to contribute to recommendations to the Secretary of State for Health on how to improve the way information is shared in health and social care? We are holding a series of workshops over the summer centred around … – Hearing the views of citizens, patients and carers
One of the panel members looked at a Law Commission project on data sharing between public bodies . The paper below is a summary of that work. Note that the panel decision was to support the proposal Law Commission brief
One of the panel members looked at the Information Commissioner’s Office consultation on a draft anonymisation code of practice with a view to avoiding duplication of effort. The paper below is a summary of that work. Note that the panel … – ICO consultation on anonymisation code of practice
One of the panel members recently took legal advice on the use of the words necessary and expedient in the Health and Social Care Act 2012 . The paper below is a summary of that work. Note that the panel … – Use of “necessary and expedient” in the Health & Social Care Act 2012
The panel held an evidence gathering session on consent and control on Wednesday 18 July. The questions they considered are posted below. You are welcome to submit any further evidence on this theme or any other area of concern to the … – Evidence session on consent and control
We are delighted to be able to share a video record of John Carvel, a member of the information sharing review panel, in conversation with Dame Fiona Caldicott. They discuss her previous review, what has changed in the interim period … – Interview with Dame Fiona Caldicott
The panel are holding a series of meetings to hear evidence during the summer and early autumn. While sessions have already been held on a number of themes including commissioning and public health, the panel does continue to welcome further evidence on … – Submitting evidence to the panel