From July 2004, a new national reporting system was announced by the Chief Medical Officer. This is centred on the National CJD Reporting Form to be faxed, by the notifying clinician, to the National Creutzfeldt-Jakob Disease Research & Surveillance Unit (NCJDRSU), the National Prion Clinic (NPC) and the local CCDC. The National CJD Reporting Form and associated documents are available at the links shown below.
This system does not preclude the possibility of a clinician informally discussing a suspect or doubtful case with the NCJDRSU or the NPC. The NCJDRSU are very happy to discuss cases and provide clinical and other advice concerning potential cases of CJD. The NCJDRSU continues to provide a national CSF 14-3-3 service and will arrange courier collection of CSF samples and prompt results.
Annex A: National CJD Reporting Form
Annex B: Patient Information Leaflet
Annex C: Roles and Responsibilities for reporting, surveillance diagnosis and care of patients with CJD
Annex D: Contact details