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Carers blog

The NHS Choices community where carers share their experiences, ask questions, get advice and discuss their situation with other carers.

Posts from May 2009

  • Video: Julie's story

    by Caspar on 15 May 2009

    Julie became a full-time carer when her husband and her mum were both diagnosed with Parkinsons disease. She describes how this affects her own health and her social life, and where she found help.

  • Hello- I'm new here

    by Kerry Page on 12 May 2009

    Hi all, have just agreed to become a 'blogger'- I didn't know what it meant until then!

    Anyway may I introduce myself first: My name is Kerry, I'm married to a wonderful man,  I have 4 children between aged 20 and 10. My youngest two boys are both severely disabled (Fragile X Syndrome/autism and stuff). I am just about to finish my 3rd year at full time university where I have been studying for a degree in Health and Social Care (2 weeks to go) and I'm being very naughty and taking a day off revising today!

    I hope to get a job eventually working with carers; supporting them, fighting for our rights and so on, that would be my ideal anyway. But first I have to learn Welsh and complete the final part of my ECDL (European Computer Driving License) which has proved entirely useless but never mind.

    Before all this, I will be catching up on a few things which have gone by the wayside. And spend some valuable time with my boys.

    So hello everyone, that's me!



  • Hi,

    We decided on our forum that we would take this opportunity to speak about when services went well or became difficult for carers, so look out for our posts.



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Carers' questions answered in the Carers Community

Advisors from the national Carers Direct helpline are constantly monitoring the Carers Community forum waiting to answer questions on legal, financial and other issues affecting carers. If you've got a problem and don't mind sharing it, they can offer some help.

Are you a carer? Join the blog

The carers blogWe're looking for more carers to tell their stories in the carers blog. So if you want to share your experiences of being a carer and hopefully help others, download the registration form, follow the instructions and we'll set you up.

The carers bloggers

Shelley121 looks after her husband who has bipolar disorder and Borderline Personality Disorder
is 27 and has been caring for her partner with mental health problems and gender identity disorder since 2006
The Mother feels that after 26 years as a carer, 'The Mother' is the only identity that she is really allowed
ned ludd, carer
has a grown-up son with learning and physical disabilities, who needs 24 hour care. He wants to change the culture of caring to focus less on bureaucracy and 'box-ticking'
has cared for his wife, who has Alzheimer's, for 13 years. He would like to hear from people in a similar situation
Wonderwoman1 cares for her husband, who has a back injury, and her 2 children who both have autistic spectrum disorder
aka User145767 is a full time carer for his daughter 'G' who has Downs Syndrome.

Scribbler John
cares for his Dad, who has had a stroke, and his Mum who has mobility problems
  cares for her 90 year old husband who has Parkinson's disease and diabetes
Deborah Packenham
has a son with autism and is National Autistic Society (NAS) Branch Officer for Barnet
Sam S is a youth and community worker for The Princess Royal Trust for Carers
Kerry Page has 4 children between aged 20 and 10. Her youngest two boys are both severely disabled with Fragile X Syndrome and autism
Wendy1 is from Chill4usCarers

More information:

The opinions expressed by the bloggers are their own not those of the NHS. If you have any concerns about your health or of those in your care you should contact your GP or use our medical advice now section.

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