Social care and disability

The Government believes that people needing care deserve to be treated with dignity and respect. We understand the urgency of reforming the system of social care to provide much more control to individuals and their carers, and to ease the cost burden that they and their families face.

  • We will establish a commission on long-term care, to report within a year. The commission will consider a range of ideas, including both a voluntary insurance scheme to protect the assets of those who go into residential care, and a partnership scheme as proposed by Derek Wanless.
  • We will break down barriers between health and social care funding to incentivise preventative action.
  • We will extend the greater roll-out of personal budgets to give people and their carers more control and purchasing power.
  • We will use direct payments to carers and better community-based provision to improve access to respite care.
  • We will reform Access to Work, so disabled people can apply for jobs with funding already secured for any adaptations and equipment they will need.

View the Governments response to these comments

Your comments (211)

  1. Sarah says:

    Increase the amount that a carer can earn in a job before the carers allowance is taken off the carer. At the moment this stands at £100 a week. Putting a monetary value on this is insane. Surely it should be a maximum number of hours each week, not a limited income.

  2. Alan says:

    I deplore the Government’s recent decision to publish the Serious Case Reviews into the recent tragic deaths of children. The reason is simple – Serious Case Reviews are an opportunity to have a deep, no-holds-barred look at what went wrong, learn lessons and take action to stop them recurring.

    There is a strong parallel with the airline industry where for 15-20 years, pilots have been able to anonymously report incidents or lapses for which they were wholly or partly responsible. The focus is entirely on finding out what went wrong, and by aggregating data, discovering root causes and putting preventative measures in place.

    Without that guarantee of anonymity, reports would drop to almost zero, a huge opportunity to improve would be lost and more lives would be lost. Similarly, if those particpating in Serious Case Reviews do so under the threat of publication, the levels of openness will decrease, and the value will be lost.

    The curse of unintended consequences.

  3. JOHN says:

    I have heard all about these planned cuts of benefits but what I am worried about is the fact that the people on disability benefits are poor anyway. Why cut their benefits? The bills are still the same amount each week and month and the benefits they get now do not cover it.

    How poor do you want us to be? I am on disability allowance and cannot work. I am 58yrs old and have no chance of getting a job when thousands of public workers are going to be made redundant and employers will look to them first before any disabled person.

    Please do not cut our benefits. We cannot live on them as they are now never mind any cuts.

  4. Jane MacMaster says:

    Thank you for the opportunity to express my opinions.

    I would like the new government to give more support to the traditional family, encoraging family life and allowing parents to decide when their children should be given sexual education. (Due to circumstances there will be instances where this needs to be undertaken by an outside ‘authority’). I would like to see sexual abstinence education strongly supported. I would like to see laws passed to protect human life from the moment of conception to natural death. Consequently there should be adequate top quality hospice care nationwide for the terminally ill.

    I would hope that all suggestions involving the legalization of assisted suicide or any form of euthanasia would be outlawed.

    I would like to see the so called privacy laws in many cases thrown out, above all the crazy restriction on asking patients admitted to hospitals etc, their religion. Anyone can say ‘none’, if they do not wish to divulge this or have no religion. This law may well deprive very ill people of spiritual solace when they most need it.

    Thank you once again, I hope you take what I have written seriously,

  5. julie Corbett says:

    carers assessments and direct payments and each LA to publish detailed and rolling ten year plans on type, location of all respite, day services, accessible provision and have a scheme to transfer to supported living for all family if required.

    make it a duty for social workers who sign off care plans to check if disability benefits are actually reasonable and if too much or too little to report for investigation. make DLA a local benefit.

  6. TimF says:

    I think the government needs to make it a priority to get people back to working who are long term sick. Many of these people are capable of work just not in the trades or professions in which they started their careers. If people really cannot find a job they should be required to work for a voluntary agency of their choice even if this is within a reduced working week. This would allow voluntary agencies to increase their effectiveness.

  7. Ruth says:

    Please remember the vulnerable who do not have a voice. The organisation CSCI which no longer exists, accesssed and assessed care homes and the care and care plans for the occupants, this has now been diluted in the form of the Care Quality Commission which has taken CSCIs place. Community homes for people with learning dissability are no longer assessed, even when serious concerns are raised CQC will not become involved and there is no one else to go to. Many people with learning dissability do not have anyone to speak for them and in the case I am personally connected with even if they are able to raised the alarm with someone they are not entitled to legal aid. Not all people with a learning dissability are able to vocalise safeguarding issues.

  8. Helen says:

    please consider reevaluating benefits for people with mental health issues in residential care… the current system ( as a result of a C of A judgement in the noughties means that many people with MH probs in residential settings have been in receipt of the same benefits that their cohort who live in their own homes who pay bills etc receive) In effect this means that many people that i work with receive in excess of £90 per week disposable income i.e. they have all expenses paid by the state and this is their disposable income. Not only is this unfair and excessive but it means that they accrue £10k +in savings – i think this is a costly unjust and little known anomaly . Many of the people I work with are in this position and received back pay in excess of £20k due to their years in care… they are likely to pass on huge sums of benefit income to relatives who never see them or show no interest in them. It is an huge issue… please contact me and I will describe this situation in more depth.

  9. Laura says:

    Please reform the benefits system for people with disabilities.

    My mother was recently deemed unfit to work, after 15 years of serious illness (off-topic, but I have to add here that the NHS has been absolutely amazing, and I hope you help the NHS continue with its good work [and improve on what it does less well]). So she took ill-health retirement. She then applied for benefits for her disability, and after a (very brief) assessment, was told that she didn’t qualify for the benefits because there was nothing stopping her from working.

    From what I can tell, my mum is far from the only person to experience this.

    This is both traumatic and insulting, and there are many people in the country who desperately need that money and are being denied it.

    Not everyone who tries to claim benefits for illness is faking it. Please don’t throw the baby out with the bathwater in your eagerness to cut down on benefit fraud.

  10. P.Dyson says:

    What thay plan to do to the disabled unborn is shameful
    These are dark times we walk in… do on to the meek as you would do onto yourself, sell your souls for two gold coins, but remember money is a false god, the ruler killing newborn babies< See how close we live with our past without even seeing it, as the past shows when we do truly see its far to late.

  11. It is as a reuslt of the social and environmental factors which create disabling barriers to disabled people’s participation in society that disabled people are made to be ‘disabled’ & made poor enough to suffer from the effects & stigma of poverty while being ‘cared for’ by the system which has consistently denies us respect & dignity.

    Officially, at 30%, disabled people are twice as likely to live in poverty, but ‘When the extra costs of disability are factored in, well over half of disabled people live on less than 60% of median national income, as opposed to the unadjusted figure of around 30%.’- Disability Poverty in the UK – Leonard Cheshire Report 2008.

    The National Equality Panel’s report ‘An anatomy of economic inequality in the UK’ states ‘According to official definitions, working age adults who are DDA-disabled have a median equivalent net income that is 30 per cent lower than that for other working age adults. This is a considerable fall relative to the national median since the late 1990s. However, even this understates the relative disadvantage of disabled people. As we explain in Box 7.3, this income measure includes social security benefits, including those paid to disabled people on the grounds that they face extra costs in achieving a given standard of living compared to non-disabled people. It seems perverse to include such benefits in an income measure that attempts to give a guide to relative living standards, without adjusting for the extra needs they reflect (as the measure does for household size). If extra costs benefits are excluded from net income, the net income of disabled people is reduced by more than 10 per cent, and their poverty rate would be more than 30 per cent’.

    My hope is that the Coalition Government will be brave enough, & humble enough, to admit that the current system is wrong & disabling & will then also be willing to ask us, the disabled people of Britain to work with you on how to make it right, instead of asking a whole lot of overpaid able-bodied ministers, consultants, civil servants, & administrators how they think we should be cared for. I am deeply concerned that a lot of the ideas for giving ‘more control to individuals and their carers’ are only creating a newer layer of bureaucracy & red-tape with which to stitch us up & keep us dependent. Disabled people should not be seen or made to feel that they are a drain on resources, particularly when they are actively prevented from being anything else. ‘To end disability poverty is not only a means to drive down poverty throughout the UK, and to improve the economic health of the nation, it is also an absolute necessity of social justice and inclusion in a civilised society’. Disability Poverty in the UK – Leonard Cheshire Report 2008

    Good luck & may you succeed in bringing about and making a worthy & memorable change to existing laws, practices, attitudes, discrimination & inequalities. As Dominique de Menil puts it – “What should move us to action is human dignity: the inalienable dignity of the oppressed, but also the dignity of each of us. We lose dignity if we tolerate the intolerable.”