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what should happen ???? Rheumatoid Arthritis care.

by John Littleton on 4 April 2010
“

Hello all how are you, I have been looking around different sites and organisations who all say wonderful things about treatment of R A. I believe the aim is to be symptom free or close, I believe I have come to a standstill. I do not know when my next appointment should be with a rheumatolagist, I do not know if I have a rheumatology nurse, I do not know who will see me next time I get  a doctors appointment so it is difficult to get consistency of care as I have to start all over again with explanations, this makes doctors visits very stressful and I forget things.I have no idea when my bloods were last done should I be telling the doctors what to do and when or am I missing out somewhere ??. walking is still very painful but because I can walk I have been refused any help or DLA. This leaves me somewhat confused as I only work 3 days a week as to put it bluntly I get kn*****d.and need to rest the next day.Hopefully I may yet return to full time work at some point but I am not holding my breath. I have also had to conflicting reasons for the nerve damage to my feet and legs, both say the other is wrong,,(don,t these people talk to each other. I am on about 27 pills a day, far to many, If I was sorted out the bill would be less and I would be able to do more. does any one know what a care plan is ???????????. 

Sorry about this rant but you know what they say a problem shared is a problem ignored, at least I feel better for having a moan.

will talk again soon and I promise to be more cheerful. Take care, John.

”

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John Littleton said on 7 April 2010

cheers Dave

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JCR21 said on 7 April 2010

Hi Dave

That's awfully nice of you to remove the spam comments, but please leave that to us next time. We keep a close eye on these things and all comments are post-moderated by a team of moderators, but a technical fault stopped us tackling them yesterday. Please also don't change your blog settings. All commenters must be logged in users of NHS Choices, so we can track and deal with problems.

Thanks & best wishes

John

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DaveJones said on 7 April 2010

Hi JCR21,

If you'd prefer we didn't remove obvious spam comments when you can't  - for whatever reason - and that 60-odd spam comments simply be left on this blog, then why not remove the delete capability?

Strange request though.

Also, if you'd read the comment to John which you've deleted, you'll have seen that I was advising him to make sure that anonymous comment <strong>weren't</strong> permitted.

'All commenters must be logged in users of NHS Choices'

- well that wasn't the case with the spam, was it?

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JCR21 said on 7 April 2010

Hi Dave

There are a few issues with the commenting area that we're looking to sort out, one of which is the delete button which should only be available to moderators and the other is spam comments/pingbacks. The 'attack' the other day is the worst we've had, so we need to redouble our efforts on that score. Because the blogs have gained in popularity in recent months, we're getting more as our traffic grows and I know it's a pain to see the comments fill up with junk.

As I've said in my comment on your post, I was genuinely thanking you for taking the trouble to remove the pingbacks (though I can see my language could be misread as insincere) and I hope you'll reconsider your decision not to post any more here.

John

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The arthritis blogWe're looking for more people with arthritis to tell their stories in the arthritis blog. So if you want to help others by sharing your experiences, download the registration form, follow the instructions and we'll set you up.

The arthritis bloggers

Missmeena's arthritis began with sports injuries which have been exacerbated by wear and tear
Everby has a theory that whenever she tells the Dr things are OK, a week later they fall apart again
Kim Hicks is 28 and takes so many tablets for her RA she says 'if someone shook me I'd probably rattle'
DaveJones was obsessed with RA after being diagnosed 2 years ago, but is now carrying on regardless
John Littleton is 51 and had led a fit and active life until being diagnosed with RA last year
Kezza1 is 'held together with velcro and fibreglass' and is delaying an ankle fusion as long as she can
Bouncingtigger thinks of her arthritis as a toddler who will occasionally through a huge tantrum
Helen has found Humira works for her RA and has given her the confidence to move away from her husband
Stevebethere has been living with psoriatic arthritis for 30 years. His methotrexate leaves him anaemic.
Ffredsmum is 60 and has RA for 18 years, but is still bell-ringing and has had 7 tattoos this year.
Catherine is a 'sunny side up' kind of girl whose blog is entitled 'a year to good health'. She has sarcoidosis.
Gail has psoriatic arthritis and is taking anti-TNF medication Enbrel.
BryanUK is 26 and has ankylosing spondylitis. He has just begun a course of Humira.
Wonkylegs is having methotrexate injections, leflunomide, NSAIDs and pain-killers for her RA
Katykat is a cat lover with spinal stenosis who is also suffering from depression.
Emma Wells was diagnosed with rheumatoid arthritis at age 17.
Clariana has rheumatoid arthritis and is a self-confessed hyperchondriac.
Ann's rheumatoid arthritis worsened after she had to reduce her steroids due to early signs of cataracts.

More information:
Nothing in this blog should be taken as medical advice. If you have any concerns about your health you should contact your GP or use our medical advice now section.

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