Hello all how are you, I have been looking around different sites and organisations who all say wonderful things about treatment of R A. I believe the aim is to be symptom free or close, I believe I have come to a standstill. I do not know when my next appointment should be with a rheumatolagist, I do not know if I have a rheumatology nurse, I do not know who will see me next time I get a doctors appointment so it is difficult to get consistency of care as I have to start all over again with explanations, this makes doctors visits very stressful and I forget things.I have no idea when my bloods were last done should I be telling the doctors what to do and when or am I missing out somewhere ??. walking is still very painful but because I can walk I have been refused any help or DLA. This leaves me somewhat confused as I only work 3 days a week as to put it bluntly I get kn*****d.and need to rest the next day.Hopefully I may yet return to full time work at some point but I am not holding my breath. I have also had to conflicting reasons for the nerve damage to my feet and legs, both say the other is wrong,,(don,t these people talk to each other. I am on about 27 pills a day, far to many, If I was sorted out the bill would be less and I would be able to do more. does any one know what a care plan is ???????????.
Sorry about this rant but you know what they say a problem shared is a problem ignored, at least I feel better for having a moan.
will talk again soon and I promise to be more cheerful. Take care, John.