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COPD blog

People living with chronic obstructive pulmonary disorder (COPD) or working with COPD sufferers discuss their symptoms, treatment and life with the condition.
  •  

    I must admit that this last week I did a stupid thing – yes and hands up to Geof the miner he warned me not too. Early this last week I started to cough a bit more than usual, and what was coming up was less than good. But I felt fine and decided, yes it looks like a chest infection. But I don't feel I have one coming. Day two I was coughing a little less, and things looked better. Great said I. Got away with this one. Remember, like many I have an emergency supply of antibiotics then just need to order the steroids if needed..

    Day three, and oh dear, feels like that suspected chest infection maybe a chest infection. But what was coming up was not looking too bad said I. What a stupid assumption says I now. Day four my pulse was racing and my oxygen levels were dropping. So down go the antibiotics. I of course ordered the steroids – and started taking them. Trouble is, the pills don't work straight away. So yesterday (day five ) my pulse were racing near 100 when resting, my oxygen levels were very low at rest, and I were coughing for Wales, well the UK in fact.:-)

    If that had of carried on today (day 6) or got worse I would have seriously considered a trip to the hospital. Thankfully though, today my pulse is dropping and my oxygen levels have risen slightly. Tomorrow of course the pills will have kicked in fine, and things should continue to improve. The message here is – and of course Geof you will be right for saying I told you (smiles) – is that what I did could have had fatal consequences. In future I will listen to my body, my inner siren too, and rather be mistaken but take them pills. A lesson learned indeed.

    On a brighter note it is nice to see the warming – even if of course it is wetter. I do notice a big difference when the temperature rises above 50F when I am outside. And hopefully by the middle of April it will of course be warmer.

    None the more because after a harsh winter I have decided my precious wife Lynne and I could do with a break so have opted for a few days in Somerset after having managed to secure ground floor accommodation – of course essential for myself and ensuring there is ample entertainment to keep us amused in the evening. Lynne has always wanted to visit Exmoor so by day trips to enjoy, and of course my hobby landscape photography will keep me occupied. Something truly to look forward to next month. However, you can be sure of one thing, the emergency supply of Antibiotics will never be far from my side, and if I should receive a warning, this time, there will be no hesitation in popping the pills.

  • Genetic diseases

    by steady joe on 17 March 2010
    Hello everyone now is the time of the year I have to go for my yearly check up at Birmingham.  Although I suffer from COPD I also suffer from a rare genetic disease called Alpha1. It is a condition caused by an antitrypsin deficiency in the liver. This affects my immune system and can cause Liver or lung disease or both.
    The Adapt project at the Queen Elizabeth Hospital Birmingham runs test and trials for this condition. At least there is a great team at Birmingham and a wonderful support group with Alpha1.
    So far this year constant infections six lots of antis so far, fingers crossed it will stay away for a bit. The weather is turning nice it’s good to feel the sun warming my bones makes you feel better.
    Take care everyone
  • As we enter the second half of March is it nice that at last it is steadily becoming warmer, although like many there is as yet no sign of spring growth or trees coming into leaf yet. Even better is not having had an infection for over three weeks now. Yes it does not sound long but this winter after having one after the other it really seems like a milestone.

    March though is a month that I hate most, being that I have an allergic reaction to some tree pollens every March, and yes the air is starting to fill with them now even though we cannot see the growth. I have this every year, and it goes to my chest. So badly did it do so a few times when I was young I went along for a chest x-ray to make sure there was not something serious there. Of course now I have severe COPD this really is a double whammy. So for the first time am using anti histamines which, thankfully, seem to be working.

    I still have my usual problems even without the chest infections, getting breathless far too easily, I hate climbing my stairs at home and only ever go up there as a last resort because of getting out of breath, although meantime trying to get some exercise even if walking is far too painful an exercise for me. I find walking very embarrassing as I feel that people are looking at me as I hobble along with a stick, even maybe with pity, as I have to stop so many times as I wait to regain my breath. Part of the problem maybe also that my mind does not feel as old as my failing body or to be more precise lungs.

    The most useful tool I have at this moment is my little oximeter. Apart from telling me my oxygen saturation levels it also give pulse rate. And this can give me an almost foolproof method of determining if a suspected coming chest infection is in fact one. When a chest infection starts to set in it is harder for the heart to pump blood through the lungs, and the pulse rate shoots up – and it will stay high while resting. Mine is usually high anyway ( around 82 while resting) – but if I notice while relaxing I cannot get my pulse below 90 then down go the antibiotics and a trip to the doctor. Oxygen levels fall too at this time. This is a little gadget that I would recommend anyone with COPD to get. They are available on ebay for around £50 although some are much more than this. I also used this tool to see how far my oxygen levels dropped after climbing my stairs. Watching that fall to 80 while sitting and getting my breath back is an education – although after a minute it does start to rise again quite fast. The normal for a person without lung disease is about 98 and climbing the stairs will not effect it.

    Like many I have a select group of friends on the social networking site 'facebook', and a question was, Do you think Derek is a party animal?'. The answer was yes. Oh how I wish I had both the energy and the breath to be one, alas, although once I were, many years ago, nowadays it is more of feet up and watch a movie on the TV, with the occasional glass of lager. The question of course was answered by someone that has not met me for many years and is not quite aware of how severe my problems are nowadays – although I blog on COPD forums I tend to not talk about my health on facebook and some would not be aware I am ill, well it is a nice little escape to chat about anything but COPD. A big change from my younger days when I was always out. Although even nowadays get a warm evening and I will ask my lovely wife Lynne to drive us up the pub where there is a great outside table area so we can relax in the fading light and enjoy a drink outside.

    The one thing I love about summer is being able to be out in the open air – I have always been a countryside and nature lover – and am sure that we will drive to many lovely places with the camera and stop in places we can relax and enjoy what we see. Where we live we have mountains to admire, the Gower heritage coast only an hours drive away, and many other places of interest. Being an amateur meteorologist I am forecasting a good summer this year – much better than the recent ones, so hopefully I am right and we can get out and enjoy often. I have though already invested in a nice fan as of course the muggy warm nights can at times be as bad as the cold. Can't win can we:-).

    But for now – I look forward to the trips we will take this summer, to the sea, the country, the Brecon Beacons, in fact anywhere my wife and I can get a nice breath of fresh air while we sit and relax taking in the beauty.:-)

  • Just a quick note

    by steady joe on 10 March 2010

    Makes  you  feel  better  seeing  the  snowdrops  through  the  window  the  winds  are  still  chilling  though.

    Looking  forward  to  some  sunshine  to  warm  my  bones.  

    It's  always  difficult  this  time  of  the  year  still  fighting  off  infections  hoping  for  a  respite  So  far  this  year  I  have  had  six  lots  of  anti's  fingers  crossed  again.

    I  am  still  attending  drop in  sessions  trying  to  build  up  my  stamina.

    Received  a  letter  from  my  MP  today  saying  he  would  not  be  able  to  support  the  cause  for  rare  diseases.

    This  is  the  third  time  he  has  turned  down  requests  for  support  on  medical  issues .............  guess  who  will  not  be  getting  my  vote  at  the  election.

    Keep  smiling  everyone  spring  will  soon  be  here   

  • Sick lungs don't show.

    by Derek Cummings on 26 February 2010

    As said on my previous blog I visit several blogs – the internet really is my friend be it communication , shopping, and as a general tool. It was while looking at one blog I noticed Shirley Gamble's post that just about fully summaries what it is like for many, myself included, that suffer with COPD. Shirley lives in Nottingham and like many of us herself is ill with COPD. Her post is as below:

    Sick lungs don't show!

    I may not look sick, BUT....I have Chronic Obstructive Pulmonary Disease(COPD).
    What is COPD? It includes such illnesses as emphysema,chronic bronchitis and sometimes asthma. It is primarily characterized by extreme shortness of breath.
    Living with COPD means many things..having to avoid all kinds of strong odours, smoke, flowers, perfumes, cleaning supplies, paints, solvents, vehicle exhaust, shaving lotion, bath powders, incense, temperature extremes or wind, crowds, moulds, and dusty places because they make me short of breath.

    Physically:
    Living with COPD can mean having difficulty walking up stairs or inclines, not walking very far, being unable to rush or "being rushed" tiring easily-especially if things last too long, being unable to tolerate tight clothing and the inability to talk for any length of time.

    Socially:
    Living with COPD can mean coughing in public which attracts attention and embarrasses me, having to use or wear devices or equipment, or take medication which invites public comment (oxygen, cold weather masks, inhalers), being concerned (often excessively) about contact with cold or flu germs, having my friends make short, pleasant, smoke-less visits
    Emotionally:
    Living with COPD can mean crying easily, angering easily, become frustrated and impatient because I can't do the things I used to do. Feeling resentful when others tell me, "you don't look sick". Sick lungs don't show!.
    Being panicky and tense, being dependent and demanding because it's frightening when you can't breathe.
    COPD affects my family too! They are affected by: adapting to my various physical, emotional, social and environmental needs and limitations, leaving many functions earlier than they wish because of me or never even getting there, having to check out all of the details in advance and getting places early and having to remain calm and reassuring at all times.
    REMEMBER: I may not look sick.... but..SICK LUNGS DON'T SHOW!!!!

  • A bad day

    by HazelT on 25 February 2010

    One of the things that most frustrates me about having COPD is the speed with which a normal situation can deteriorate into something quite frightening. I thought I had well got over my recent chest problems and had gone back to life as usual, which this morning involved driving to a village about fifteen miles away to a meeting. The weather was damp and miserable, but I was quite warmly dressed and feeling OK. It was a good and productive meeting, and I left at about 12.30 for the half hour drive home. But I didn't get home, I got a puncture. On a main A road, just as it passes through a small town and the road narrows, but I managed to get partly off the road so I wasn't actually blocking the (heavy) traffic.

    OK, so I'm in the RAC and was able to call them for help. They did warn me that it would take a long time, and in fact it was an hour and a half before the Rescue man arrived. By this time I was feeling quite chilled just sitting in the car, but of course I had to get out and stand around in the rain while he tried to sort the car out. The spare (never been used) was a bit soft, so he tried to pump it up and the valve went. More waiting, while he then pumped up the punctured tyre and put it back on the car so that I could drive up the hill and round the corner to a tyre place. More standing around in the rain being told that the tyre was not repairable (a cut about an inch wide right in the middle of the tread) and some negotiation for new tyres to be fitted. By this time it was 3.15, and I had been sitting or standing around in the cold and rain for two and a half hours. No hat, no umbrella, just a leather jacket. I was desperate to get warm and dry, coughing badly and feeling quite sorry for myself. Where's the nearest cafe? Well, it wasn't far, but predictably it was uphill all the way. By the time I got there (after several stops on the way up the hill) I wasn't even able to ask for a cup of tea! Half an hour in the warm, pot of tea and a pasty and I felt well enough to go back, pick the car up and drive home. But for a while there I wasn't sure I'd make it through the afternoon, and sitting here now I am still suffering from a bit of chest pain, although I've stopped coughing and am breathing quite normally again.

    What I've learnt today (for the umpteenth time, but one forgets in between) is just how narrow the gap is between feeling OK and feeling really, really, bad. And I must remember to make sure that I have hats and gloves and umbrellas and a walking stick with me at all times, even in the car.

    Filed under: ,
  • A long winter

    by steady joe on 18 February 2010

     

     It’s  still  cold  and  damp  outside being  February  I  expect  we  haven’t  seen  the   last  of  it  yet. 

    I  shouldn’t  be  surprised  the  weather  is  so  changeable  it’s  Great  Britain  I’m  talking  about.

    I  am  surprised  how  many  infections  are  still  going  about  what  used  to  happen  was  a  prolonged  cold  spell  seemed  to  kill  them  off.

    I  suppose  with  all  the  worldwide  travel  that  people  do  nowadays  it’s  too  easy  to  bring  fresh  infections  back  with  them. 

    Starting  the  cycle  off  once  again.

     

    Snowdrops  are  out  and  the  birds  are  singing  so  maybe  it  will  not  be  long  before  some  warmth  gets  back  into  my  bones.

    Just  a  small  question  to  all  you  out  there  who  have  completed  pulmonary rehab  do  you  have  a  fortnightly/monthly  maintenance  program  to  keep  you  fit?

    Is  so  where  is  the  program  held  and  are  they  supervised  by  hospital  staff?

    I  have  become  involved  with  our  COPD  pathway  program  so  it  would  be  interesting  to  find  out  what  is  generally  on  offer.

    That's  all  for  now,  to  all  of  you  out  there  keep  warm  and  safe  spring  should  not  be  long.    

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  • I caught a cold...

    by HazelT on 16 February 2010

    Although my lungs are damaged through emphysema, I do like to think that otherwise I am reasonably fit. I work quite hard to keep myself healthy, eating well, getting plenty of exercise and plenty of sleep, etc, and also keep up to date with flu jabs, pneumonia jabs, checkups etc. So normally my immune system is pretty good - I either don't catch colds when other people round me have them, or I shake them off fairly easily with perhaps 24 hours of snuffles and a few days with a worse cough than usual. Not this winter, though. I had one bad go back in November - only a cold, but of course it went straight to the chest and I was pretty well immobilised for a fortnight. And now it's happened again. A really bad head cold, blocked nose, snuffling and sneezing for a week now. And a much worse cough than usual as well, of course.

    I thought perhaps it would be of interest if I shared my personal method for dealing with this kind of exacerbation. It's not really conventional and perhaps wouldn't work for everybody, but it seems to help me. For a start, I don't take steroids or antibiotics. I'm already using inhaled steroids (symbicort), and on a couple of occasions in the past I was given prednisolone but it just had no effect at all, so I don't have it. I think the reason why it doesn't work for me is that there is no asthma element in my COPD. I only start on antibiotics if I have severe pain in my chest or the mucus I am producing goes a nasty green colour, which thankfully hasn't happened for three years now! So, what do I do? I spend as much time in the open air as possible. Having a dog who expects walks at least three times a day rather forces one out of doors (although there are times when I wish I'd chosen a goldfish instead of a collie). If my lungs are bad, we go very slowly and not very far, but we stay out for an hour or so in the afternoon, with slightly shorter walks in the morning and evening. Whatever the weather, as long as I am well dressed up for it I breathe much better outside than inside. As a general rule even when I'm well I try to avoid places with air conditioning, as that seems to make me cough. The only medicine I feel comfortable taking is one of those lemon-flavoured hot drink powders with a bit of paracetamol in - not the strong 'max' types - with a spoonful of honey and (last thing at night only) a dollop of Scotch. Apart from that I just slow down - I try not to do anything that will get me too breathless, and if I feel I'm struggling I just stop whatever I'm doing until I feel better. Obviously going to the gym is out of the question, too.

    It's been a week now and I'm beginning to feel better. For me, getting through it naturally without too much medication, relaxing as much as possible, seems to be the best way to go.

  • The winter woes with COPD

    by Derek Cummings on 12 February 2010

    Into the middle of February and at least I can console myself with the thought that come April the weather will really start to turn warmer again enabling me to get out a bit more. A sentiment that I am sure everyone with severe COPD reading this blog agrees with.

    This has to say the least been a challenging winter for me health wise – with infections seeming to come one after the other – antibiotics and steroids – and the often use of the nebuliser. It sometimes is hard to stay positive when out of breath when trying to walk even a short distance. More annoying is getting breathless when climbing my stairs or even getting dressed or drying myself after getting out the bath. Having said that I try to stay positive knowing the warmer weather is on the way and that my infections will be far less often and my chest will ease and hopefully I will get a little less breathless. I have because I get very breathless walking even the shortest distance just about given up on walking and use the car all the time – the blue badge is a godsend as it means I can park next to shops that I want to go into and if wanting to get out with the camera can even park on a double yellow lines. In fact this winter in my mind has been so bad am already thinking if only I could get out of the UK to Cypress or somewhere warmer for the worse of the winter months. I am sure that if I were able to do that there would be huge benefits for me health wise.

    For years I kept secret my health problems with COPD from all but my nearest and dearest although I am much more open and talk on several blogs about the conditions – listening to how it effects others and offering support where I can. Does that help me to cope? It helps talking to others as it can be a very lonely feeling fighting this on your own. We can all support each other with this illness. For anyone reading this remember I was diagnosed in 1987 so it has taken very many years to reach this stage so it does take a long time to get to severe or beyond. Even then as long as I look after myself – keep away from crowds as crowds are a good way to pick up infections – make sure you get your annual flue jabs – have a pneumonia jab – get plenty of rest – eat well – sleep well – get some exercise know matter how little – stay warm in winter - and stay positive you can still look forward to quite a few years of good life. Ok lets face it – I am never going to run a marathon, or even walk at normal pace again – but by doing what we can do there is a lot to look forward to.

  • Spring is coming

    by steady joe on 06 February 2010

    Hello  everyone, 

    the  weather’s    returned  to   normal  for  the  time  of  the  year.

    Not  very  good  for  a  lot  of  us  bringing  on  infections  once  again.

    It’s  not  much  fun  sitting  watching  the  world  go  by  most  people  are  in  too  much  of  a  hurry  trying  not  to  get  drenched.

    I  have  seen  our  first  snowdrops  springing  up  the  garden  is  coming  back  to  life  again.

    I  just  wish  it  would  get  warmer  I  suppose  it’s  only  time  at  least  it’s  getting  lighter  at  nights.

    I am  still  keeping  up  with  our  Pulmonary  drop  in  service  it’s  good  to  catch up  with  friends.

    We  have  a  good  system  here  Normal  Pulmonary  Rehab  6 week  course  followed  by  a  drop  in  facility  every  two  weeks.  It  allows  you  to  keep  in  touch  with  the  same  staff  so  any  questions  about  your  general  health  you  can  put  to  them.  It  can  mean  a  shortcut  to any  services  you  might  need.

     

    I  am  a  big  believer  in  this 

    A               It  makes  you  fitter

    B               It  encourages  self  worth  if  you  are  able  to  live  a  better  life

     

    I  think  that’s  all  for  now  folks  speak  to  you  again  soon.   

  • Hello from a New Poster

    by AdrianLeslie on 02 February 2010

    Hi all just thought that I better introduce myself as a new and hopefully frequent Blogger. My name is Adrian and I am a 45 year old man living in a small village in Mid Wales. I am single after a long term relationship ended about 5 years ago and now share a house looking after my mother (well that was the plan but seems the other way around most days).It was kind of strange having her live with me after nearly 30 years but luckily the house is big so we rattle around in or own areas most of the time.

     

    About 3 years ago I was diagnosed with COPD after being a long term mild Asthma sufferer. After a while I was spending more time away from work than in and eventually had to go permanently sick. I had some further tests and part of my emphysema was what is termed as Bullas emphysema which is like expanding air sacks with in the lung which take up the space where the air I should be breathing is. I then suffered a collapsed lung and spent a week in Hospital. Whilst there it was decided that I would need lung surgery in the future and in September 2008 I had a Bullectomy (very similar to Lung reduction surgery) where they cut a large part of my lung out and some of the Bulas in the hope that the lung will stretch and give me more intake. After this I went on to suffer a Bronchial collapse where my lungs just decided “enough s enough”. I came round in an Intensive Care unit 4 days later on a ventilator but at least I was alive.

    I guess thats it for my medical CV, I have spent a while and still am going through the mill as are many others but hopefully this will be another way to help myself and possibly others.

  • It is with great relief that this very cold weather is gone and that at last I can venture out a little from my front door. This winter has took a real toll on me even though I hardly go out when it is around freezing. The end story is I went down with the worse chest infection I have ever had – my second of the winter. Struggled for breath and the doctor seemed very concerned how bad I had got this time. Thank god the steroids and antibiotics along with the nebuliser done their job and at last I feel a lot better.

    I have been doing a lot of reading on COPD this last week having not much else to do with being so ill with this dreaded infection, and found an excellent site by John Kirtley BA. John - a COPD sufferer whom unfortunately died in 2008 formed the site to help other sufferers by answering the many questions we all have. It contains so much information that is hard to come by and I found much of what was written to be very interesting. It can be found at http://www.emphysema-copd.co.uk/index.html

    Having COPD, coughing, breathing heavy, accompanied by many stops in the street to gain breath, often made me feel so alone. It is only after research that I have found there are many others like me suffering this illness. As said before in a past blog I never really took COPD seriously at first. The reason being I was told matter of factly years ago that I have COPD, but were never ever told the real implications of it. Now, having got to the severe stage and being forced to retire from work because of my illness and shortness of breath I have much more time research.

    I try to do as much as I can as far as exercise as I realise after reading up so much on COPD that some exercise is essential, and that if I do not do any my condition will worsen at a much more rapid pace. Not always easy, especially on the worse days but even if it is only for a very short time – apart from when I have been really bad – I have managed some.

    Like many with this disease I cannot go out when the temperature is very low as my FEV drops like a stone as soon as I open the front door in very cold temperatures making me immediately breathless – so to compensate for not getting out at all I make do with lifting little weights in various ways – and just stopping when I start to get breathless.

    I know I should not wish what is a shortened life away but I am so looking forward to the warmer weather in a few months when I can jump into the car with the camera and take some nice pictures down the coast, the Brecon Beacons, or some other scenic spot here in South Wales. The advantage living in this part of the world is that many a lay-by offers great scenery to take pictures from so no real effort is needed apart from setting up the tripod and camera. It really will be good to feel the sun on my body, and see the spring flowers and buds on the trees:-)

  • There was a recent report on the BBC news website about some research carried out at Nottingham University which concluded that people who develop chronic lung disease are likely to be shorter in height than the general population, by about 1.12cm (half an inch in old money). They suggest that the reason for this may be that 'people who came from poorer backgrounds were more likely to have had mothers who smoked, had poor nutrition during their early years affecting general growth and lung development, and were more likely to live in smoking households and smoke themselves.'

    Now I'm sure we've all heard the old wives' tale about smoking stunting your growth, but the statement I have quoted just seems wrong to me. For a start, there are many factors which affect height. The most important is your genes, but nutrition is certainly important as well. I saw this at first hand when I lived in Spain; the generation which had been brought up in the extreme poverty of the 1940s and 50s were in general only about 5ft tall and often bowleggd as a result of rickets or other nutritional diseases, while their grandchildren growing up in the 80s and 90s were tall, straight and altogether different looking.

    However, while the implication that people who smoke are from the lowest classes, poor, underprivileged, ill-educated, either unwilling or unable to feed themselves and their children properly, is a popularly held belief and may even have some truth in it nowadays, I don't think it would have been so forty or fifty years ago, when the youngest of the subjects of this study were born. It's true to say that badly nourished children who live in poor conditions and inferior housing probably don't achieve their full growth potential and are generally more unhealthy (including a tendency to lung conditions such as asthma and bronchitis) but not true to say that in the past only the underprivileged poor smoked.

    This kind of twisting of the facts to suit a particular political lobby or hobbyhorse annoys me. It may be, of course, that the research was perfectly sound and the reporting was careless. Later in the article they quote someone as saying that doctors should look out for 'shortness' as a possible marker to COPD, as if GPs didn't have enough to think about... Anyway, how can one possibly tell at first sight that a person is half an inch shorter than they could have been, had they had an ideal, well fed, smoke free childhood?

    The full article can be found at http://news.bbc.co.uk/l/hi/health/8446552.stm which also gives a link to where the research was published in full.

  • Another year older

    by Eileenbetty on 08 January 2010

    Greetings everyone and a healthy 2010 to all the bloggers and of course staff.  

    Just to say I have now joined the big Senior Ciitzen club as from the 1 January 2010.  Had a good celebration with my family and friends.  Have stayed clear of infections over the festive season but I feel I am starting something now.  I will keep a careful eye on it and if necessary I will take the steroids and antibiotics.  Thank goodness I have a reserve stock of these prescriptions as we are still snowed in and I wouldn't be able to get to our surgery or chemist although my husband would be able to walk there for me. Plus these things always happen over the weekend.  

    It all looks pretty looking out but not so good if you need to get about.  Stay warm and safe everyone.  Eileen 

  • New Year, New Contributor

    by HazelT on 07 January 2010

    Hello, everyone. I've just joined the COPD blog team, and thought I'd start by introducing myself. My name is Hazel, I'm 62 years old and live in Saltash, Cornwall, with a man and a dog. My COPD must be about 99% emphysema, as I have never suffered from asthma or bronchitis (or indeed any respiratory problems) in my life. It was diagnosed in 2003 and I think I've just about now learned to live with it without being too depressed or frustrated.

    I was a smoker, of course. Not only was it a respectable thing to do, back in the late 60s I even had a job with a constantly replenished silver cigarette box on my desk. Mind you, we also had gold top milk in our tea and coffee - something else that I wouldn't dream of doing these days. In 1984 I went to work in Spain for what was only planned to be six months or so but ended up as sixteen years. I taught English in schools where the teacher's desk always had an ashtray provided. During the 1990s there was a bit of a movement towards discouraging smoking and we stopped doing it in the classroom, but I was totally unprepared for the demonisation of the smoker that I met when we returned to England. There was a lot of culture shock involved in coming back after so long, but one of the worst moments was on the day of my father's funeral, hearing my brother telling his daughter (aged about five, then) to keep away from Auntie Hazel because she smoked! At the end of 1999 my husband and I both caught the flu and were really quite ill. I decided it was time to stop smoking and as soon as I was able to get out of the house I called in to a local chemist for advice, came away with some subcutaneous lozenges to suck and gave up easily and immediately.

    I never really noticed the promised improvements in health and temper, however. In fact, as time went on I was getting more and more breathless. Other people seemed to notice it more than I did, and eventually I got so embarassed by strangers asking me if I was all right and my husband telling me to stop sighing ('I'm NOT sighing. I'm breathing!') that I went to my doctor - and you can guess the rest. In the beginning, partly thanks to one unsympathetic and unhelpful person at the local Chest Clinic, I was very depressed and felt as if I had no prospects apart from sitting about waiting to die. This phase lasted longer than it should have done, I am ashamed to say. And I did get worse and worse... Research, mostly on the internet, seemed to indicate that exercise would be a good thing. I have always walked the dog for a couple of hours a day, however bad I may be, but sometimes we didn't get very far in that time. Just staggering slowly round a field is not enough exercise! Eventually I managed to psych myself up to getting in a swimming pool. I couldn't even do a width without stopping for breath, but I didn't get a coughing fit, so I was encouraged to carry on. From there I worked my way up to aquacise classes, something I'd enjoyed before becoming ill, and someone from aquacise suggested I might like to try a nice gentle body movement class, then I took up yoga again after a 30 year gap, then seniors' exercise, pilates, body pump... in fact any kind of exercise that isn't too aerobic. The improvement wasn't miraculous, but it was steady, and I believe that being generally fit helps me to cope with the lack of lungpower. So that's where I am at the moment. Working hard at keeping going, but it's worth it.

     

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Become a COPD bloggerWe're looking for people living with and carers of those with COPD to tell their stories in this blog. So if you want to talk about your difficulties and triumphs, download the registration form, follow the instructions and we'll set you up.

The COPD bloggers

AdrianLeslie was a mild asthma sufferer before being diagnosed with Bullas emphysema.
HazelT
was a smoker for 30+ years. Her COPD began around 4 years after she gave up.
Steady Joe
is a grandfather, COPD sufferer and story writer
Derek Cummings wishes he'd taken his COPD more seriously before it reached a more severe stage
Geoftheminer
is determined to live as full a life as possible despite being diagnosed three years ago with COPD
Eileen
is 58 and was diagnosed with COPD (or emphysema as she prefers to call it) eight years ago.
Benbow
is 80 and developed COPD after having part of his lung excised in 2000.
Christopher
was diagnosed with COPD six years ago. His condition is now complicated by osteoporosis.

We're looking for more COPD bloggers. If want to join the group, email us on talk@nhschoices.nhs.uk

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