The Information Standards Board for Health and Social Care (ISB) closed on 31 March 2014.

Responsibility for the recommendation for approval of information standards has transferred to the Standardisation Committee for Care Information (SCCI).

Information standards continued to be published here until 31 December 2014, after which they are published on the Health and Social Care Information Centre (HSCIC) website.

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The details about this information standard are current at 31 December 2014. To find out whether they remain current after this date please check the SCCI publication pages on the HSCIC website

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Standard ISB 1580

Number ISB 1580
Title End of Life Care Co-ordination: Core Content

Improving the co-ordination and quality of care provided for people at the end of life is the major aim of the DH End of Life Care Strategy. This standard supports communication between providers (such as out of hours and ambulance services) about end of life care plans so that more people are supported to die in the place of their choosing and with their preferred care package.

Approaches to communication between providers of end of life care vary widely and depend on local service and system configuration. In some areas, this communication is being implemented through electronic palliative care co-ordination systems (formerly known as end of life care locality registers), as recommended in the strategy. The standard specifies the core record content required to support communication and co-ordination of end of life care so that information can be implemented accurately and consistently in electronic record systems, irrespective of the local implementation approach.

Applies To

1. Implementers and organisations planning the development of EPaCCS (electronic palliative care co-ordination systems) as a means of improving end of life care provision and supporting choice.

2. Service providers providing care for adults (those aged 18 years and older) at the end of their life.

    • Service providers include: primary, secondary and community care teams, social care providers, ambulance services and out of hours services
    • May also include pharmacies, voluntary sector, and private sector.

3. Suppliers of IT systems to those providers and commissioners (including any systems that contribute to, or hold information that relates to, care co-ordination for adults at the end of their life).

Status Approved
Sponsor Philip D Walker
Sponsor Organisation Department of Health
Owner Joint
Current Release Amd 16/2013


Date Published Release Number Release Title Stage Link to Documentation
12-Dec-2013 Amd 16/2013 Version 2.1 Maintenance Documentation
13-Dec-2012 Amd 29/2012 October 2012 Amendment Retirement Documentation
20-Mar-2012 Amd 11/2011 Initial Standard Retirement Documentation